CF Endocrinology Summit Meeting

 The Inaugural CF Endocrine Summit meeting is planned for July 6, 7 & 8th, in 2021. The event will be hosted at The Lodge at Whitefish Lake, in Whitefish, MT, 26 miles from the entrance to Glacier National Park.

The purpose of this gathering is to bring together thought leaders in the Cystic Fibrosis (CF) Endocrine community who are advancing research as well as promoting more progressive therapy of diabetes as well as other endocrine disorders in CF. The Summit program will be comprised entirely of endocrinologists (both pediatric & adult) who are a part of the Cystic Fibrosis Foundation’s EnVision CF program, of which there are thirty members.

The mission of the EnVision program is to fund training for physicians interested in developing expertise in the endocrinologic care of patients with cystic fibrosis. The speakers will present their latest research and findings to the attendees. The objective of this program is not only to create a space for the EnVision endocrinologists to come together and share their wisdom with each other, but also to expand the knowledge of endocrinologists who partner with patients living with CF, but whom are not fully immersed in a CF care center, enhancing their understanding of the many nuances and variances of CFRD versus T1DM/T2DM as well as the other endocrine involvements seen in CF.

The Summit will also encourage the attendance of CF Center Directors in future meetings, with the goal of developing more cohesion, shared understanding and fluidity in the treatment of the CF related endocrine disorders in the CF Clinic. The Center Directors have a rich opportunity to enhance the teams understanding of CFRD and the critical need for a strong continuum of care as it relates to diabetes management.

Our goal for the Summit is that current EnVision members walk away inspired by their colleagues’ research and motivated to move their research and others’ research into practice. We hope that endocrinologists who are not currently connected to a CF care center find inspiration to integrate the newfound critical knowledge into practice as well as understand the need for communication between the providers. CF Center directors should leave with a better understanding of the pulmonary implications associated with CFRD, providing motivation for more expansive communication with patients and care team members, aggressive observation of diabetic potential in each individual they serve and a shared partnership of understanding with the endocrinologist who mutually serves their patient population.

We are in an exciting time of transition, CFTR modulators are showing extensive positive momentum in the lives of those with CF, so we are encouraged to look at the future. We recognize the long-term implications of diabetes in CF have not been well studied due to limited lifespan. However, those timelines are now shifting. We must come together as a community to become educated and proactive in the treatment of CFRD and other endocrine related disorders.

If you would like further information on the Summit meeting, or would like to be updated when the training program is available, please share your contact information below.

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